KitchenKitten99
05-19-2008, 10:52 AM
I have actually been wondering (well before the show aired) about having Nathan see a neurologist and maybe get an MRI to see maybe if there is an underlying issue that can be treated differently. When this show aired, it was like someone read my mind, with just the idea of it. Now it might actually come to fruition. You would think that the medical and therapist communities would be embracing this logical idea. I am wondering about the general reaction to this may be because some facilities that rely on attendance counts (i.e. schools/districts and therapy centers) to get specific funding and maintain their income/bottom line, are worried about losing what looks to be half of their income if these people/children have been misdiagnosed all these years? Think about it- the more people/kids that are officially diagnosed, that means they get additional funding for that individual. I would hope that is not the case, but in today's society, I would not put it past them. If they really didn't care about the bottom line, why would they be resisting something that may help the very people and families they treat/help?
link: http://abcnews.go.com/GMA/OnCall/story?id=4882297&page=1
The Answers to Autism May Be Inside the Mind
Dr. Fernando Miranda Says Neurologists Should Be More Involved in Autism Fight
By CLAIRE SHIPMAN and ARIANE NALTY
May 19, 2008
On the front lines of autism treatment, things can get emotional, controversial and -- sometimes -- hopeful.
One doctor in California is arguing that trying to diagnose autism without looking at the brain is like trying to diagnose a heart condition without looking at the heart, though the established autism community isn't so sure.
But for parents like Sarah Kavanaugh, Dr. Fernando Miranda has changed their lives.
To be sure, Kavanaugh would have had her hands full anyway. For the single mother of twin 6-year-old boys, Beckett and Webb, the days start early.
"Come on guys, let's have some breakfast," she shouts.
Beckett and his brother, Webb, come bounding out of bed smiling. It takes quite a while to get these two youngsters to arise from their slumber. But once they are up, the twins are ready for the day.
Beckett immediately runs to his dog, Wilson, an old English sheep dog, while mom prepares their morning meal.
"Breakfast," yells Beckett, loud and clear.
For the last five years, Kavanaugh has been struggling to get him to this point and it's still hard for her to think back on the heartbreaking diagnosis she got when Beckett was 18 months old.
"They just watched him play in a room with a little kitchenette set and some stuffed animals and from that they deemed that he would be autistic," she said, shaking her head. "I was shocked, devastated."
Beckett always struggled with his speech, unlike his twin brother, Webb. More and more specialists gave her grim news about his condition.
"I heard everything from a resident telling me he would never advance beyond the intellect of an 18-month-old to the school district telling me he'd have to have a companion for the rest of his life," Kavanaugh said.
Searching for a New Frontier
But there was something -- his eye contact, his eagerness to relate or maybe it was just a mother's instinct -- that told her otherwise. (This sounds just like me!)
And her lawyer's instinct. Kavanaugh's legally trained mind allowed her to think outside the box.
The lawyer's thorough searching led her to a doctor who was taking parents' demands for answers to a new frontier.
Miranda, who runs the Bright Minds Institute in San Francisco, insists that you have to look inside the brain to determine what's wrong.
"You have a child that comes to me and mom says, 'Why is my child not talking?'" he said. "We know that speech is in the brain. What's going on in his brain? I think we should answer that and I think we should answer that as objectively as possible."
But that is not the typical method of diagnosing autism. Behavioral tests are the standard. Indeed, neurologists are often only brought in when cases seem unusual. Even then, high-powered MRIs and cutting-edge EEGs are only used selectively.
Miranda said that's because neurologists have not been as fully involved in the field of autism as they should have been. He thinks that should change.
After looking at Beckett's MRI, Miranda explained that the corpus colusum, the brain freeway that connects the two hemispheres, was a bit thin. That is crucial in any sort of diagnosis because it can affect language.
(there are two more pages, so click the above link for more)
link: http://abcnews.go.com/GMA/OnCall/story?id=4882297&page=1
The Answers to Autism May Be Inside the Mind
Dr. Fernando Miranda Says Neurologists Should Be More Involved in Autism Fight
By CLAIRE SHIPMAN and ARIANE NALTY
May 19, 2008
On the front lines of autism treatment, things can get emotional, controversial and -- sometimes -- hopeful.
One doctor in California is arguing that trying to diagnose autism without looking at the brain is like trying to diagnose a heart condition without looking at the heart, though the established autism community isn't so sure.
But for parents like Sarah Kavanaugh, Dr. Fernando Miranda has changed their lives.
To be sure, Kavanaugh would have had her hands full anyway. For the single mother of twin 6-year-old boys, Beckett and Webb, the days start early.
"Come on guys, let's have some breakfast," she shouts.
Beckett and his brother, Webb, come bounding out of bed smiling. It takes quite a while to get these two youngsters to arise from their slumber. But once they are up, the twins are ready for the day.
Beckett immediately runs to his dog, Wilson, an old English sheep dog, while mom prepares their morning meal.
"Breakfast," yells Beckett, loud and clear.
For the last five years, Kavanaugh has been struggling to get him to this point and it's still hard for her to think back on the heartbreaking diagnosis she got when Beckett was 18 months old.
"They just watched him play in a room with a little kitchenette set and some stuffed animals and from that they deemed that he would be autistic," she said, shaking her head. "I was shocked, devastated."
Beckett always struggled with his speech, unlike his twin brother, Webb. More and more specialists gave her grim news about his condition.
"I heard everything from a resident telling me he would never advance beyond the intellect of an 18-month-old to the school district telling me he'd have to have a companion for the rest of his life," Kavanaugh said.
Searching for a New Frontier
But there was something -- his eye contact, his eagerness to relate or maybe it was just a mother's instinct -- that told her otherwise. (This sounds just like me!)
And her lawyer's instinct. Kavanaugh's legally trained mind allowed her to think outside the box.
The lawyer's thorough searching led her to a doctor who was taking parents' demands for answers to a new frontier.
Miranda, who runs the Bright Minds Institute in San Francisco, insists that you have to look inside the brain to determine what's wrong.
"You have a child that comes to me and mom says, 'Why is my child not talking?'" he said. "We know that speech is in the brain. What's going on in his brain? I think we should answer that and I think we should answer that as objectively as possible."
But that is not the typical method of diagnosing autism. Behavioral tests are the standard. Indeed, neurologists are often only brought in when cases seem unusual. Even then, high-powered MRIs and cutting-edge EEGs are only used selectively.
Miranda said that's because neurologists have not been as fully involved in the field of autism as they should have been. He thinks that should change.
After looking at Beckett's MRI, Miranda explained that the corpus colusum, the brain freeway that connects the two hemispheres, was a bit thin. That is crucial in any sort of diagnosis because it can affect language.
(there are two more pages, so click the above link for more)